1st Breath – Committed to providing education, advocacy, and public awareness of stillbirth in addition to assisting families and medical professionals dealing with the death of a baby.
Angel Names Association - Nonprofit organization that assists families of stillborn children with financial assistance for end-of-life expenses and counseling services, and funding for stillbirth research.
Babies Remembered and Wintergreen Press – Author, speaker & trainer, Sherokee Ilse offers families a place to share stories and poetry, research study recruitment, updates on bereavement care and stillbirth research, and lots of baby loss grief books, booklets and videos on perinatal loss and so much more.
Baby Loss - United Kingdom online community offering information and support for bereaved parents who have suffered the death of a baby through miscarriage, ectopic pregnancy, intra-uterine death, stillbirth or other types of pregnancy loss.
Baby Loss Comfort - Has a long list of resource groups, special needs, fathers' resources, Facebook groups, and tons of books listed and mementos
Baby Loss Family Advisors/Baby Loss Doulas - Offer one-to-one care, guidance, advocacy and advice to parents as soon as they get the news and beyond. Well-trained and prepared professionals (birth and post partum), doulas, and bereaved families who are healing well can help on the phone, in person when possible, email and texts. These independent professionals who specialize in the details of loss, memory making, saying goodbye, etc are more well-prepared than most healthcare providers. They help parents gain control, lessen the initial shock, temporarily put their pain and grief on hold in order to 'embrace the joy and beauty' of meeting their baby and acting intentionally as the parent while the baby is on this earth.
Be Not Afraid - Outreach to those who choose to continue a pregnancy; adheres to the moral guidelines and ethical directives of the Catholic Church regarding sanctity of life issues without compromise.
Bears of Hope: Australia - Pregnancy and Infant Loss Support.
Bereaved Parents of the USA - Grief resources with chapters across the US, for parents who have no living children. National non-profit (with chapters) self-help group that offers support, understanding, compassion and hope especially to the newly bereaved. Whether they are bereaved parents grandparents or siblings struggling to rebuild their lives after the death of their children, grandchildren or siblings.
Bereavement Services - Otherwise known as the Resolve Through Sharing people. They provide perinatal loss resources and training for caregivers.
Beyond Pregnancy Loss – An Australian-based site offers informational and support to people all over the world. Helen has written a book of the same title which takes people on their own journey to rediscover the unresolved aspects of their loss, placing them in a better position to deal with their grief.
Birth Injury Center – Our mission is to assist anyone who has been affected by a birth injury. Our website includes information about the causes, signs, risks, and possible prevention of stillbirth.
Centering Corporation – Grief resources, books and many, many loss materials.
Center for Loss in Multiple Birth, Inc. (CLIMB) – A support network by and for parents who have experienced the death of one or more babies from a twin or higher multiple pregnancy, during pregnancy, and at or after birth.
Colorado Pregnancy and Newborn Loss Services – Support and grief education for families through subsequent pregnancy.
Compassion Books - Mail order catalog for networking, training and resources related to loss, grief, death, dying, comfort, and hope.
Compassionate Friends - Grief support after the death of a child. Compassionate Friends can help you find the support, understanding and work towards healing.
Coping with Miscarriage - Offers advice and resources on miscarriage.
Count the Kicks - CTK is an evidence-based stillbirth prevention campaign that provides educational resources to healthcare providers and expectant parents.
Daily Strength – Miscarriage/Stillbirth online support group.
Empty Cradle – Offers support through monthly meetings (San Diego, Riverside, CA) at different locations, telephone support, a lending library, literature for new members, a memory box program in some area hospitals.
Faces of Loss, Faces of Hope - Putting a face on miscarriage, stillbirth, neonatal and other infant losses. Voices of Loss Pen-Pal Program links baby loss mothers, fathers, or grandparents together. Stories are shared, support is offered helping people feel less alone. Visitors can search for experiences similar to their own with an easy search tool.
Faith's Lodge – Retreat for families after loss or who have children with life threatening illnesses.
Finley's Footprints (United Kingdom) – Shares stories, resources, links, casket information, a blog and more.
Forget Me Not Foundation – Dedicated to supporting families with losses - pregnancy, birth, or shortly after birth, and educating the medical community about the emotional needs of such families. Support educational programs for the medical community and provide supportive materials to families affected by pregnancy or newborn loss at Hackensack University Medical Center.
Glory Babies - A Christ centered support group for those grieving the loss of a baby during pregnancy or infancy, and/or for those struggling with infertility. Stories, poems, articles, prayer requests, list of support groups.
Grief Journeys - Faith based baby loss community. All are welcomed.
Grief Net – Internet support for dealing with grief, death and major loss. Email and website support groups including a companion site, KIDSAID, that provides a safe environment for kids and their parents.
Grief Watch – Resources, memorial products, advice, and links that can help with perinatal loss
Grieve Out Loud - Pregnancy and Infant Loss Support, pen pal support and so much more.
Grieving Dads – A forum for dads who have had a child die to connect and grow.
Group B Strep International - Offer support and information, education, awareness, promotes testing and treatment of GBS and advocates for research and prevention.
Help After Neonatal Death (HAND) – California-based support groups in various cities/regions, also offer resources, networks and other services to help families.
Hannah’s Prayer – An organization with Christian emphasis, concentrating on infertility or the loss of a child any time from conception through infancy. Local support chapters, newsletter and pen pal connections.
Healing from the Start – Promotes guidance for medical caregivers on how to help families when a baby dies. A must have for all caregivers who want reminders and additional ideas on how to help families.
Healing Hearts-Baby Loss Comfort – Suggestions about what to do and say, and ideas to comfort and support grief and healing, place for women to feel comfortable looking for real, physical comfort, herbal remedies and spiritual nurturing, as well as a space to find resources, honor their grief and express their loss.
Healing Hearts for Bereaved Parents (Washington) - Offers support, friendship, coping help, pen pals, monthly newsletter. For families with pregnancy/infant loss and older children.
Healing Hearts Media – Personalized Baby Loss Bereavement Videos for parents using their baby’s pictures.
A Heart-Breaking Choice - Outreach to those who choose to terminate a wanted pregnancy due to severe or lethal birth defects.
Heaven Born - Nonprofit project where books and pretty, soft, handmade pillows are given to women who have suffered an early pregnancy loss to comfort moms and honor babies.
Hiring for Hope - Seeks to ease the shared emotional, psychological, and financial duress common during times of loss and crisis for job seekers, couples experiencing loss and or obstacles to building their families, and their friends and family members. We aim to eliminate their feelings of hopelessness, isolation, and shame, and replace them with renewed hope, opportunity, and a sense of empowerment to control the outcome of their own destinies.
I Am A Mother to An Angel - Support system for bereaved families by offering them a safe place to share about their angels and find healing after their loss.
Infants Remembered in Silence (IRIS) – Store, support resources, education.
In-Sight Books, Inc. - Doug Manning, author and founder of In-Sight Books and the In-Sight Institute have one mission: helping people help people. They carry wonderful grief care books that cover a wide variety of topics for the newly bereaved and for professionals.
International Society for the Study and Prevention of Perinatal and Infant Death (ISPID) – Leaders in the world in discovering evidence-based preventative measures for stillbirth and sudden infant death. Promotes educational workshops/training and holds biennial conferences.
International Stillbirth Alliance (ISA) - International Stillbirth Alliance. An international coalition of organizations founded by stillbirth parents, it promotes research, raises awareness, educates, and is a network of support for bereaved families.
Loss Doulas International (LDI) - Offers certification education for Baby Loss/Perinatal Loss Doulas and Postpartum Loss Doulas. Newly bereaved parents deserve to have educated, aware, and compassionate Parent Advocates and Loss Doulas to offer them guidance on their painful, personal journey.
Miscarriage Association (United Kingdom) - Website provides information on miscarriage, molar pregnancy or ectopic pregnancy,
Missing Grace - Helps provide resources and support for families that have experienced: pregnancy loss, infant loss, infertility or adoption and to advocate for comprehensive, patient focused prenatal care for all women.
Mommies Enduring Neontal Death (MEND) – A Christian, non-profit organization that reaches out to families who have suffered an infant loss including miscarriage and stillbirth. Provides free newsletters and holds commemorative ceremonies. Has chapters in Texas, Arkansas, Missouri, Oklahoma and Washington.
Mothers in Sympathy and Support (MISS) - Helps families who have had a stillbirth or early infant death through local support groups, camps for grieving kids, resources, newsletters, and web site.
Naomi’s Circle (Columbia, SC) - Serves parents who have had a baby die during anytime in pregnancy. Has online forums, support groups, events, information, memorials.
NeoFight - Supports families in perinatal crisis including a difficult pregnancy, miscarriage, stillbirth, neonatal death and premature babies. Also offers training program for parent listeners. (24-hour email helpline).
Nickolas' Gift – Gives a baby quilt, wooden memory box, and other 'caring' items when a baby is born with problems and needs to be transferred. Also offers support to parents.
Now I Lay Me Down to Sleep – Touch up photography offered in many communities during the hospital experience. Also offers online Bereaved Family Forum. Now I Lay Me Down to Sleep is honored to offer all families an online source for support and healing.
Pregnancy and Infant Loss Network (PAIL) (Canada) - Leaders in supporting families, raising awareness, and providing education programs to health professionals.
Perinatal Hospice - Helps prepare families who know their baby will die, guidance to create birth plans, plans for living fully with the baby prior to delivery, and care for baby while dying and afterwards.
Pregnancy Loss and Infant Death Alliance (PLIDA) - Provides support, advocacy, awareness, education, resources for Health Professionals and Parent Advocates. Biannual conferences.
Preemie Prints – Dedicated to sharing hope with families experiencing the difficulties of life in a neonatal intensive care unit with a premature or sick baby through information, photography, gift bags, support, and prayer.
Pregnancy Loss Meetup Groups – Meet with others online who have had pregnancy losses. Many options all over the US and Australia (so far).
Return to Zero: HOPE - The first movie on stillbirth based upon a real story of parents (Sean and Kiley Hanish) in LA who had a terrible experience at their hospital. This Lifetime movie helped open the door for awareness, understanding and change. Return to Zero-H.O.P.E. Foundation was formed by Kiley Hanish to help families whose baby died through Healing Retreats, Outreach and Education, Peer Support and Community and Empowerment.
RTS - Offers training and support for professional care providers and more
Secret Club Project - Art work created by mothers and fathers who have had a miscarriage or other infant loss.
Share Pregnancy & Infant Loss Support Inc - Serves those whose lives are touched by the tragic death of a baby though early pregnancy loss, stillbirth or in the first few months of life. Offers free baby loss grief packets, a support website, chat room, grief information and many resources to newly bereaved families, as well as caregivers.
Sidelines - Offers support and groups to families with complicated and high-risk pregnancies, especially bedrest support.
SIDS and KIDS (Australia) – Researches causes and provides support for bereaved families and community education to reduce incidence of SIDS and stillbirth. Offers bereavement support and counseling for families who have experienced stillbirth or the sudden and unexpected death of a child, whatever the cause, from 20 weeks gestation to 6 years of age.
Silent Grief - A safe place of healing, support, and hope during your time of grief, loneliness, and depression after miscarriage, stillbirth, or older loss.
Star Legacy Foundation - A community dedicated to healthy pregnancy outcomes and stillbirth prevention. We provide education, support research, offer family support, raise awareness, and encourage advocacy regarding pregnancy loss and neonatal death.
Still Standing online magazine: Embracing Life After Loss & Infertility - Mission is to show the world that those who have had infertility or loss are ‘still standing’, holding fast to resilience and hope. It encourages women, men, and children to embrace life, connects hearts around the world who have similar life experiences, and a resource for bereaved families, supporters, and caregivers. Offers an amazing list of resources for download and has active blog and discussions.
Stillbirth And Neonatal Death Support Australia (SANDS) - Promotes awareness and understanding following the death of a baby from conception through infancy. Newsletters, provides links to regional support groups, offers support, training, and resources.
Stillbirth And Neonatal Death Support New Zealand (SANDS) - Promotes awareness and understanding following the death of a baby from conception through infancy. Newsletters, provides links to regional support groups, offers support, training, and resources.
Stillbirth And Neonatal Death Support United Kingdom (SANDS) - Promotes awareness and understanding following the death of a baby from conception through infancy. Newsletters, provides links to regional support groups, offers support, training, and resources.
Stillbirthday – A pregnancy loss is still a birthday. Many resources and helpful information.
Subsequent Pregnancy After A Loss Support (SPALS) - is a closed email-based, community support group that has given thousands of grieving parents a safe and compassionate forum to connect and share experiences with others who know the depths of grieving a child and the fears associated with subsequent pregnancy.
The 2 Degrees Foundation - A nonprofit that raises funds to improve stillbirth data collection, research, awareness, education, training and bereavement support. 2 Degrees works to empower expecting moms and pregnant people to advocate for themselves, their unborn babies, and their families.
The Haven Network – Northern Illinois' perinatal hospice and bereavement center, provides companionship on the grief journey to families who are facing a terminal diagnosis of their pre-born or newborn baby. Also supports those families who have lost a baby through miscarriage, stillbirth, ectopic pregnancy, SIDS and early infant death.
The Solace Foundation - Nonprofit, offers comfort and support to bereaved parents after a pregnancy or infant loss. Also supply care packages to doctor's offices and hospitals.
The Tears Foundation - Non-profit that assists bereaved parents with the financial expenses in making final arrangements for their precious baby who has died. Many of the founders and volunteers are bereaved parents who want to support newly bereaved parents in their time of devastating sorrow. Financial support for funeral expenses – working to create chapters in every state.
Trisomy 18 Foundation - Offers decision-making help, support, research, awareness and education. Can put you together with other families
Twin to Twin Transfusion (Ohio) - Provides immediate and lifesaving educational, emotional and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin-to-twin transfusion syndrome. Provides NICU, special needs and bereavement support.
Twinless Twins Support Group International (TTSGI) - Exists to provide a safe and compassionate community for twinless twins to experience healing and understanding. Offers support for twins and other multiples who have lost their twin due to death or estrangement at any age.
UNITE, Inc. (Philadelphia) - A nonprofit organization, has been providing grief support following the loss of a baby, including miscarriage, ectopic pregnancy, stillbirth and infant death to parents in the Philadelphia area since 1975.
Unspoken Grief: Breaking the Silence of Miscarriage, Stillbirth & Neonatal Loss - Supports individuals and families who have been touched directly or indirectly by miscarriage, stillbirth and neonatal loss. Working together to remove the stigma of perinatal grief by sharing our stories and increasing awareness of the lasting effects of perinatal loss. Many online articles.
Wintergreen Press, Inc.- Advocates and supports families, empowers parents, promotes healthy babies and stillbirth research, and sells literature and audio-visuals. Consultant-trainer Sherokee Ilse writes poems, articles, and offers updates on infant loss and general bereavement issues.
Your Baby, My Baby, Inc. - A Christ centered organization dedicated to ministering to parents and families that have suffered the loss of a child. We offer families around the clock on-call bereavement support, quarterly bereavement support groups, as well as headstones for burial sites of infants, children & teenagers up to the ages of 17 years old. Visitation, support & care packages to expectant moms on home & hospital bed rest. Offers support, encouragement, support & care packages for parents and families that have infants and children in the NIC & PIC Units of local hospitals.
DISCLAIMER: The resources on this page were submitted to ASAP and posted at the request of the member when joining. The ASAP Coalition and collaborators have made reasonable efforts to ensure the content provided is up to date and accurate. However, it does not guarantee, and accepts no liability or responsibility for the accuracy, currency or completeness of the information provided. To the extent permitted by law ASAP and it's collaborators exclude all liability (including negligence) for any injury, loss or damage caused or arising out of any reliance on the content on this website or it's links. Web links from this site to external websites should not be construed as implying any relationship with and/or endorsement of the external site. ASAP reserves the right to change, add, or remove information or material on the website at any time without notice.
Copyright © 2022 Stop Stillbirth ASAP - All Rights Reserved.